Parkinson’s affects everyone differently, and needs can change from day to day as well as over time. For many people, staying in their own home, with familiar surroundings and routines, plays a big part in living well with the condition.
Here are some practical ideas families often find helpful. They aren’t a substitute for advice from the person’s GP, specialist nurse or therapists, who will know their situation best.
Keep routines consistent
Many people with Parkinson’s find that a predictable daily routine helps them feel more in control. Regular times for getting up, meals, activities and rest can make the day easier to manage. It also helps family members and care companions plan around the times of day when the person tends to feel at their best.
Make the home easier to move around
Small changes at home can make getting about more comfortable:
- Clear walkways and remove clutter, loose rugs and trailing cables.
- Arrange frequently used items within easy reach.
- Consider a firm chair that is easy to get in and out of.
- Ask about an occupational therapy assessment, which can recommend equipment and adaptations.
Allow extra time
Everyday tasks such as dressing, eating or getting ready to go out may take longer. Rushing can increase frustration and stress, so it often helps to build in plenty of time and to let the person do as much as they can for themselves.
Stay active and involved
Staying active, in whatever way suits the person, is often encouraged by health professionals. Many people continue to enjoy walks, gardening, groups and hobbies. Local Parkinson’s support groups can also be a valuable source of friendship and practical ideas for both the person and their family.
Look after communication
Parkinson’s can sometimes affect the voice and facial expression, which may make conversations harder. Allowing time, reducing background noise and being patient all help. Speech and language therapists can offer specialist support if communication becomes difficult.
Support for the whole family
Caring for someone with Parkinson’s can be demanding, particularly as needs increase. It’s important that family carers look after their own wellbeing too, and accept help when it’s offered.
How live-in care can help
A live-in care companion can provide consistent, one-to-one support at home, adapting to the person’s routines and to the way their needs change over time. Having the same familiar person there each day can help with everything from mobility and meals to keeping up hobbies and getting out and about, while working alongside the person’s healthcare team.
If you’d like to talk about how live-in care could support someone living with Parkinson’s, we’re happy to help.